“Abbu… Kya Main Dobara Bol Paunga?”

A Question No Child Should Have To Ask

Faijam Alam is 14 years old, and at an age where most children worry about exams, friends, and small dreams about the future, he is carrying a question no child should ever have to ask. Sometimes, in quiet moments at home, he looks at his father and asks, “Abbu… did I lose my voice forever? Will I ever get it back?” It is not just a question. It is fear, confusion, and hope all at once. And the hardest part is that his father does not have an easy answer.

A Childhood That Slowly Changed

Faijam was not always like this. He had simple dreams. He wanted to study, go to school regularly, and build a future for himself. He once said he wanted to become a doctor. But slowly, something began to change. A rare condition called lymphatic malformation started growing inside his body. It did not appear suddenly. It grew with him, quietly at first, and then in ways that could no longer be ignored. Today, it affects the way he looks, the way he eats, and even the way he speaks.

When The World Turns Unkind

His tongue protrudes outward, something he cannot control, and because of this, the world around him has not been kind. Children at school began calling him names. They called him “evil,” not because they understood what he was going through, but because they did not. What should have been a place of learning slowly became a place of discomfort. Of stares. Of whispers. Over time, even crying became difficult for him.

A Daily Struggle To Live Normally

At home, the struggle continues in quieter ways. Eating is no longer simple. Some days, he survives only on milk and biscuits because chewing food becomes painful and difficult. Speaking takes effort. Living normally feels like something that belongs to someone else. This is not just a condition that changes appearance. It is something that slowly takes away a child’s ability to live freely.

A Father Watching In Silence

His father does not use complicated words to explain the situation. He simply says, “The disease is growing with him.” In that one sentence, everything is understood. He watches his son struggle every day, trying to eat, trying to speak, trying to live in a world that does not understand him. There are days when he cannot bring himself to eat. “Some days, I skip my meals,” he says quietly. “I cannot eat… seeing his pain.” Faijam is their only son, and the fear of losing him is something the family carries silently, every single day.

The Treatment He Urgently Needs

Doctors at SK Care Hospital, Raipur have advised that Faijam requires detailed medical evaluation, including immunology and genetic assessment, followed by treatment with immuno-modulators, care for secondary infections, and supportive surgical intervention if required. This is not a short or simple treatment. It will take two to three months of continuous care, monitoring, and medical support. The estimated cost of this treatment is around ₹12,50,000, an amount that feels completely out of reach for a family already struggling with daily survival. Whatever little savings they had have already been spent.

A Dream That Refuses To Fade

And yet, despite everything, Faijam has not stopped dreaming. Somewhere inside him, the child who wanted to study and become something still exists. But right now, his world has become smaller, limited by pain, limited by his condition, and limited by circumstances he never chose.

A Family At Their Breaking Point

His family has done everything they could. They have spent what they had, adjusted their lives, and tried to manage each day as it came. But now, they have reached a point where they cannot go any further alone. The treatment he needs cannot wait.

A Simple Wish, A Real Chance

Faijam is not asking for a perfect life. He is not asking for comfort or luxury. He only wants to eat without pain, to speak without struggle, and to go to school without fear. And sometimes, that is all a child really needs.

Because He Deserves More Than This

Faijam is not what people call him. He is not “evil.” He is a child, a son, a boy who once dreamed of becoming a doctor. And today, he just needs a chance to live like one.