"Kaisa Kachua Wala Bachcha Paida Kiya Hai." These are the words strangers say when Avikar's mother steps outside with her son.
So she stopped going outside.
Avikar is one and a half years old. He has never played in a park. He has no friends his age. And his mother, who should be showing him off to the world, is instead hiding him from it not out of shame, but to protect him from the cruelty of people who see only what is growing on his face, and not the child underneath.
What Is Happening to Avikar
Every day, Avikar's nose grows a little bigger.
He was born with a condition called large frontonasal encephalocele, a rare and serious defect where brain tissue pushes through an opening in the skull and protrudes into the nasal and frontal region. It is not a small abnormality. It is visible, it is growing, and it is taking over.
It has already taken so much from him. At an age when children are running, falling, getting back up, Avikar cannot walk. Cannot stand on his own. On difficult days, he cannot even drink water properly.
His mother watches this happen. Every single day, she watches her son struggle with things that should require no effort at all, and she has no way to stop it.
The doctors at SK Care Hospital, Raipur have been clear: Avikar needs multi-stage surgical intervention. This is not optional. If treatment does not happen now, the damage will compound. What is already serious will become something far worse, far harder to reverse.
Time is not on Avikar's side.
The Family He Was Born Into
Avikar's father, Kabeer Das, is a laborer.
He does not work nearby. He leaves the village and goes wherever work takes him, returning home only after ten, fifteen days. He is not absent because he does not care. He is absent because a family this poor cannot afford for him to be present.
When he is gone, Avikar's mother is alone with her son.
They eat once a day. Not because they choose to because that is what they can manage. There are no savings. There is no financial cushion. Whatever little existed has already gone toward trying to understand what is wrong with their child and how to fix it.
"Hum itne garib hain ki khana bhi ek hi time kha sakte hain," she says. We are so poor that even one meal a day is what we can afford.
What She Carries Alone
Avikar's mother does not speak about her grief the way people expect.
She speaks about the taunts. The neighbors. The strangers at the market who look at her son's face and say things out loud that no mother should ever have to hear. She started staying inside. She stopped taking him out. The world outside felt safer without her in it.
"Main khud hi bahar jaane ke liye darti hoon ghar se. Log mujhe isko dekh ke sunaate hain."
She is afraid to leave her own home. Because outside, people do not see a child. They see a face that looks different, and they make sure she knows it.
This is what this condition does to a family. It does not only grow inside the child. It grows around the entire family, shrinking their world smaller and smaller.
Avikar is her only child. She has no one else.
What She Is Asking For
She does not ask with anger. She does not ask with demands. She folds her hands and she asks the way a person asks when they have exhausted every other option and this is the only door left.
"Main ek garib maa, sab se haath jodh ke vinti karti hoon — uska ilaaj kara do."
I am a poor mother. I fold my hands before everyone. Please help get my child treated.
She knows what a small donation means to someone giving it. She also knows what it means to her.
"Aapka chhota sa daan diya hua bhi ek garib ki jhopdiyon mein khushiyaan la sakta hai."
Even your smallest contribution can bring happiness into a poor family's home.
What Treatment Will Cost
Avikar needs multi-stage surgery. He will be in hospital for 25 to 30 days. The procedure involves ICU care, multiple rounds of surgery, anesthesia, investigation, medicines, and skin graft support.
The total estimated cost is ₹8,56,000.
Kabeer Das comes home every two weeks with daily wage earnings. There is nothing left to borrow, nothing left to sell.
What Avikar Has Never Done
He has never run. He has never stood at a park and watched other children play. He has never been outside without his mother bracing herself for what someone might say.
He is one and a half years old. His whole life is still ahead of him, if we give it the chance to be.
His father wants to see him grow up, go to school, build a future — become the person who one day takes care of his parents the way they are now desperately trying to take care of him.
That future begins with this surgery.
Please donate. Please share. Whatever you can give, give it today. Because somewhere in a small home, a mother is folding her hands and her son is running out of time.
Words of Support 1
“We love you both. ❤️”